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General => The Campfire => Topic started by: CajunCamper on Aug 04, 2004, 12:28 PM

Title: He is always in our hearts
Post by: CajunCamper on Aug 04, 2004, 12:28 PM
Hi everyone, I am CajunCamper a longtime friend of this site. I haven't been here for a long time and perhaps some of you know why.

Last October 17th my 10 year old son Alex was diagnosed with leukemia. After going through two rounds of chemo the doctors were able to get him into remission. Because of the type of leukemia and the difficulty getting him into remission, he was scheduled for a bone marrow transplant because without it he was almost sure to relapse. The transplant went well, he was on his way, but because his imune system was so low he contracted a virus and was never able to recover.

Alex died on April 1st of this year. Our lives have forever been changed. I spoke with Dave back in April and asked if I could write an article for the magazine dedicated to Alex and his love for camping and Dave very graciously said yes. I am just now at a place where I am able to start writting the article, so maybe a few issues from now you will get a chance to meet and get to know Alex just a little through the article.

Alex was camping with us just two weeks before he was diagnosed and just four weeks before he died, he asked me to help him plan our next camping trip.

Just two weeks ago I opened up our pop up for the first time since that October camping trip and slowly walked inside. I sat there by myself and cried the tears of a dad that has lost one of his precious children and wondered if I would ever be able to go camping in it again. After some time, I began to smile as I remembered all the wonderful times we had in that camper as a family. I thought of all the places we had been and how we grew together as a family because of our shared love for camping. Even though it will be hard on that first outing without Alex, we have decided that the best way to honor Alex would be to continue camping in that pop up as a family.

Our Faith teaches us that Alex is at home with our Heavenly Father right now and I wouldn't be surprised if he has already picked out a few prime camping spots in Heaven for us.

Oh how my heart aches to be near him again, but for now we just have to continue to do the things that help us feel close to him. And to feel close to Alex, we must continue camping.
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Post by: jpreiser on Aug 04, 2004, 12:34 PM
I have been checking the caring bridge  link for a long time. So sorry for your family's loss. I pray for your family often.
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Post by: Tentcamp on Aug 04, 2004, 01:07 PM
I also have been checking the Alex's Caring Bridge Page. I have never written in your log but I have been faithfully praying for you all during this sad time for you.
Glad you came back to the site and are going to continue camping.
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Post by: angelsmom10 on Aug 04, 2004, 01:15 PM
Our thougnts and prayers have been with you and will continue.
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Post by: campingboaters on Aug 04, 2004, 01:20 PM
The thought of you camping without your son brought tears to my eyes as I know how special camping can be.  To camp without your son WILL be hard, but Alex would definitely want you to continue to camp so that you can continue to remember all the great times you had -- and to have more great times in his honor.
 
 Take care of yourself and your family and know that we are all here for you if you need to "talk".  I look forward to your article and getting to know Alex better.
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Post by: mowalker on Aug 04, 2004, 01:21 PM
Cajun,

 
It's so good to see you back!  I look forward to your article in the magazine.  I have also been checking the caring bridge site.  I'm glad to see you're on the path of getting on with your lives and that will take some time.  I'm sure Alex will be there every camping trip in your hearts and in spirit.  He was such a precious boy.
Ray & Brenda
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Post by: Miss-Teri on Aug 04, 2004, 02:24 PM
I kept track of his progress, and did lots of praying.  When he went to be with the Lord, I was absolutely bawling.  I can't even imagine what you and your family had to go through.

I look forward to the article dedicated to Alex.  I will continue to say prayers for you while you recount the memories on paper.

Know that your family has been and will be in our thoughts.
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Post by: byrdr1 on Aug 04, 2004, 02:42 PM
CC, so sorry for your loss......
I am a dad and lost my dad. So I can sense your pain but do not understand it.
GOD is good and he always knows better than us.
I today was a pall-bearer for my friend of 30 years..Tony, he leaves behind a wife who he would have been married to 27 years Thursday August 5th, a 16 year old son and a 20 year old daughter.. He a had a diasese that had him down for the last 14 years and the last 11 days he was on life support until his wife could get him off. I was able to be in the room with my wife and his sister and his wife and uncle when he passed. His mom had stepped out to eat as he was breathing on his on around 1pm monday..But today he is also in a better place..
I know you loved our NC mountians, hope you can make it back this way and see God's glory in the hills of NC and remember the good times. I have walked those roads these last few days. It is hard to face tomorrow, as we get older each year things change and life goes on. Just remember the hand of God is always with you.
in my prayers,
Randy
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Post by: homecrew on Aug 04, 2004, 06:23 PM
Cajun, Thanks for sharing Alex with us through the website and in a future article. It's good to see you back and we reach out with all of our hearts to you and your family. Mark, Janett and Jessica.
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Post by: MommaMia on Aug 04, 2004, 09:46 PM
I too had been following Alex's progress, but had somehow lost track and wasn't aware until just now how sadly things had turned for you.  I always admired the comfort and strength you took from God's word.  I could see how strong He kept you all, even at your weakest moments.  Alex was truly blessed to have been loved by so many wonderful, caring people that were there for you all when you needed them most.  I have said many a prayer for Alex as I was following his journey and tonight I will say another one for him.  And I'll say one for all of your family, that each of you finds the strength to make each and every day as joyous as the days when Alex was with you.  But, and I'm sure you already know this, Alex is still with you and always will be.  Just keep doing those happy, wonderful things (like camping) that brought joy to all of you.  Alex will be there with you!
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Post by: MommaMia on Aug 04, 2004, 10:37 PM
BTW... I KNOW Alex recieved many many wishes from all over, buy how many push pins has he collected on his map?
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Post by: topcat7736 on Aug 05, 2004, 12:13 AM
Cajun,
It's good to have you home again.
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Post by: vjm1639 on Aug 05, 2004, 09:10 AM
Cajun.....I'm ashamed to say I too had lost track of the status of Alex. I had followed his progress for quite a while too.  I just read your message about Alex and have just sat here and cried as I read your message several times for both your loss and your strength and faith.  As a parent, I can't imagine the pain you must have.  I am so glad to see you back among  your camping friends and hope being here helps at least a little. We'll think of Alex and say another prayer for you and your family as we toss a log on the campfire.  

 
God bless you and your family...
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Post by: brainpause on Aug 05, 2004, 10:48 AM
Here I am...sitting in the middle of the hospital (at work), just surfing the net. But being the big bully that I am, I am still fighting the tears. What a bittersweet story, that sounds like it is ending/beginning beautifully!

I just bet Alex is POINTING to some sites here on God's Earth that he hopes your camper will be soon backed into!

Larry
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Post by: NCSunshine on Aug 05, 2004, 12:45 PM
So sorry to hear of Alex's passing.  I broke down big time when I read about you going into the camper the first time and crying.  I cannot imagine your pain, it would be far worse than anything I could think of, but I will pray for you and your family.  He will always be with you in spirit when you camp as you remember the good days.  God Bless
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Post by: CajunCamper on Aug 05, 2004, 12:54 PM
Thanks so much for your continued support, we will certainly need it.
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Post by: Camperroo on Aug 05, 2004, 01:03 PM
Cajun, welcome back, you were one of the first posters I relied upon when I joined up here 3 or 4 years ago now.  I followed the story of your son an another site and was so saddened when I learned of his passing.  Now reading your post, I felt I was with you as you sat in the popup thinking of your son and as any parent would my heart felt so heavy with your loss.  You know and take such comfort that Alex is in a better place and for that I'm happy for you and your family.  But you too must know you gave that little boy so many wonderful gifts and not in the material sense, but of the pure and simple giving of your time spent with him camping and other family pursuits and he reveled in it.

Your upcoming story will become a treasured PUT magazine article, I look forward to reading it because with its sadness will come such inspiration.  God Bless.
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Post by: Campers3 on Aug 05, 2004, 05:37 PM
Though I just found your thread a few minutes ago, I feel somewhat close to you guys.  It is not our son that is ill, but my wife.  She is currently going through chemotherepy every Monday, for her Non-Hodgkins Lymphoma.  She is constantly nutrapinic (low blood counts.)  They had been keeping her in the hospital with IV drip antibiotics, trying to get her safe again.  Finally, they said to just go home, take the antibiotics and other meds at home, and if she gets sicker, to come back in. They are also talking about doing bone marrow transplant too.  

Our three year old knows that his mommy is sick, and it is very hard on him.  He knows that we have fun when we go camping, so he keeps asking to go, and he specifically says that mommy has to come too.

Anyway, sorry for rambling.  I am sad, with tears in my eyes, to read about your loss.  Our kids are the best part of life!  

I'm going to add you guys to our prayer chain, and keep you in our prayers.  

Hang in there.

Steve
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Post by: CajunCamper on Aug 09, 2004, 11:01 AM
Steve,

I will be praying for your wife, your son and for you.
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Post by: jpreiser on Aug 09, 2004, 05:42 PM
Quote from: Campers3Though I just found your thread a few minutes ago, I feel somewhat close to you guys.  It is not our son that is ill, but my wife.  She is currently going through chemotherepy every Monday, for her Non-Hodgkins Lymphoma.  She is constantly nutrapinic (low blood counts.)  They had been keeping her in the hospital with IV drip antibiotics, trying to get her safe again.  Finally, they said to just go home, take the antibiotics and other meds at home, and if she gets sicker, to come back in. They are also talking about doing bone marrow transplant too.  

Our three year old knows that his mommy is sick, and it is very hard on him.  He knows that we have fun when we go camping, so he keeps asking to go, and he specifically says that mommy has to come too.

Anyway, sorry for rambling.  I am sad, with tears in my eyes, to read about your loss.  Our kids are the best part of life!  

I'm going to add you guys to our prayer chain, and keep you in our prayers.  

Hang in there.

Steve


Steve;

Best wishes to your wife, I had treatement for hodgkins Lymphoma over a year ago. I am happy to say I am cancer free right now. Best of luck.
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Post by: mowalker on Aug 10, 2004, 11:45 PM
Cajun,
 
Keep in touch Ray and I look forward to hearing from you and pray for you and your family quite often.
 
Steve,
 
The progress they have made on non-hodgkins has been incredible. My Father had the disease and we were informed the things they did during his time has educated the medical research so much. I work with 2 survivors of this cancer and am glad to report they are in submission/remission and are doing well.
 
I did loose my Father at the young age of 45, (20 years ago) this is the man that started me camping, a legacy that will surely be passed on.
 
Brenda
 
This post is made in loving memory of my Father
Robert Mitchel (Bob) Bilger
 
 
Support your Leukemia/Lyphoma fundraisers in your area! It's worth the cause, cause we are working on a cure!
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Post by: Just Me on Aug 14, 2004, 03:49 PM
Our thoughts and prayers are with you also.
 
 
As a tribute to Alex maybe next year we all can all camp together and do a fund raiser in his name. Just a thought.
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Post by: MommaMia on Aug 14, 2004, 05:08 PM
Quote from: Just MeOur thoughts and prayers are with you also.
 
 
As a tribute to Alex maybe next year we all can all camp together and do a fund raiser in his name. Just a thought.


This is an AWESOME idea!
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Post by: mowalker on Aug 15, 2004, 03:48 AM
I agree, a fundraiser campout would be most excellent!
 
Cajun,  Tell us where and when. The rest of us would be glad to follow and help with details.
 
What a great idea!
 
Brenda and Ray
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Post by: NightOwl on Aug 15, 2004, 12:03 PM
Cajun, it is so good to see you posting again.  You have many friends here who have sent you their loving prayers all through these sad and difficult times, mine among them, and your loss is ours, too.

  The years you had him, and the loving memories, can never be taken from you  Your faith--and Alex's--inspires all of us.
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Post by: Mountaineer on Aug 20, 2004, 09:11 AM
Cajun
    We are sorry to hear of your loss.  While reading through this conversation I believe we all feel the presence of Alex. Our family joins with this group in sending our thoughts and prayers.  Faith holds us together.  Action is the next step and I too see the Alex fundraiser as a great activity.

Steve
   We have added Campers3 to our prayer list.

      Phil
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Post by: Just Me on Aug 21, 2004, 08:08 AM
Cajun,
 
I know this is a hard time for you and your family, But, we will all keep praying.
If you agree to have a fund rasier in memory of Alex where would you like to have it? All the funds could go to the Leukemia/Lyphoma, if this is where you want it to go. It looks like I have a lot of help from campers on the board to do this. All you need to do is accept the offer. It wouldn't be until sometime next year, We will leave the date up tp you. we could have a long weekend.
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Post by: iwantapopup on Aug 25, 2004, 11:39 AM
I'm so sorry that I have been out of it that I didn't even know of your sons condition but reading your post brought tears to my eyes.  I can't imagine your loss but as a parent I know how much I love my own children and how much they love camping like your son.

I'm sure he thought he was one of the luckiest kids around being able to spend all that time camping and it would sure be nice to hear of a tribute of him and his love of camping, it will make all our hearts feel good.

I hope God continues to bring peace to your family and that you are able to cherish all the time you had together.

and campers 3, I'll also pray for your wife as well.

Linda